{"id":524,"date":"2020-05-05T10:32:11","date_gmt":"2020-05-05T13:32:11","guid":{"rendered":"https:\/\/scemt.org\/?page_id=524"},"modified":"2020-05-05T10:32:13","modified_gmt":"2020-05-05T13:32:13","slug":"29-de-febrero-dia-mundial-de-las-enfermedades-raras","status":"publish","type":"page","link":"https:\/\/scemt.org\/?page_id=524","title":{"rendered":"29 de Febrero: D\u00eda Mundial de las Enfermedades Raras"},"content":{"rendered":"\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"960\" height=\"720\" src=\"https:\/\/scemt.org\/wp-content\/uploads\/2020\/02\/Enfermedades-Raras-29-de-Febrero.png\" alt=\"\" class=\"wp-image-315\" srcset=\"https:\/\/scemt.org\/wp-content\/uploads\/2020\/02\/Enfermedades-Raras-29-de-Febrero.png 960w, https:\/\/scemt.org\/wp-content\/uploads\/2020\/02\/Enfermedades-Raras-29-de-Febrero-300x225.png 300w, https:\/\/scemt.org\/wp-content\/uploads\/2020\/02\/Enfermedades-Raras-29-de-Febrero-768x576.png 768w\" sizes=\"auto, (max-width: 960px) 100vw, 960px\" \/><\/figure>\n\n\n<p>El objetivo de este d\u00eda es crear conciencia y ayudar a todas las personas que padecen esta condici\u00f3n a recibir de forma oportuna el debido diagn\u00f3stico y tratamiento.<\/p>\n<p>Las Enfermedades Raras (ER),\u00a0 tambi\u00e9n conocidas como Enfermedades Poco Frecuentes (EPF) o Enfermedades Hu\u00e9rfanas, son un grupo heterog\u00e9neo de patolog\u00edas o trastornos cuya prevalencia en la poblaci\u00f3n es igual o inferior a una en dos mil personas. Hoy cerca del 8% de la poblaci\u00f3n mundial, las padecen. Esto traducido en n\u00fameros, corresponde a un aproximado de\u00a0350 millones de afectados.<\/p>\n<p>Actualmente, se calcula que existen m\u00e1s de 6000 ER diferentes, en su mayor\u00eda cr\u00f3nicas y discapacitantes, de las cuales el 80% son de etiolog\u00eda gen\u00e9tica. Muchas tienen manifestaciones cl\u00ednicas demasiado inespec\u00edficas o muy solapadas, lo que complica y retrasa su diagn\u00f3stico.<\/p>\n<p>En Argentina, existe el <strong>Programa Nacional de Enfermedades Poco Frecuentes y Anomal\u00edas Cong\u00e9nitas<\/strong> el cual busca identificar prioridades y establecer mecanismos de coordinaci\u00f3n para mejorar la accesibilidad al diagn\u00f3stico, asesoramiento y seguimiento de las personas que presentan alguna enfermedad poco frecuente, mediante la capacitaci\u00f3n continua de los equipos de salud. As\u00ed, a trav\u00e9s de diferentes modalidades se brindan herramientas para lograr un diagn\u00f3stico temprano y una derivaci\u00f3n oportuna que permitan mejorar la calidad de atenci\u00f3n de los pacientes con una enfermedad poco frecuente.<\/p>\n<p style=\"text-align: center;\"><em>&lt;&lt; Son raras&#8230; pero no invisibles. &gt;&gt;<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>El objetivo de este d\u00eda es crear conciencia y ayudar a todas las personas que padecen esta condici\u00f3n a recibir de forma oportuna el debido diagn\u00f3stico y tratamiento. Las Enfermedades Raras (ER),\u00a0 tambi\u00e9n conocidas&#46;&#46;&#46;<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_mc_calendar":[],"footnotes":""},"class_list":["post-524","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.2 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>29 de Febrero: D\u00eda Mundial de las Enfermedades Raras - SCEMT<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/scemt.org\/?page_id=524\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"29 de Febrero: D\u00eda Mundial de las Enfermedades Raras - SCEMT\" \/>\n<meta property=\"og:description\" content=\"El objetivo de este d\u00eda es crear conciencia y ayudar a todas las personas que padecen esta condici\u00f3n a recibir de forma oportuna el debido diagn\u00f3stico y tratamiento. 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